AQW 12910/22-27 Written question to the Minister of Health

To ask the Minister of Health, pursuant to AQW 11434/22-27, to detail any contingency plans in place (i) to maintain the supply of Risdiplam; and (ii) to support people who otherwise would have been starting Risdiplam.

Asked by Danny Donnelly MLA on 4 June 2024

  • Answered
  • Written
  • After due date
Tabled
4 June 2024
Answer due by
19 June 2024
Answered
25 June 202421 days after tabling
Department
Department of Health
Priority question
No

Answer

My department has engaged with Health & Social Care Trusts and established an interim contingency arrangement. This will ensure continuity of care for the neuromuscular patient group whilst a long -term solution is being sought. This includes maintaining the supply of Risdiplam for those patients currently accessing this treatment, ensuring those patients can continue to access this specialist medication.

The Health and Social Care Trusts, along with SPPG, will continue to work together to ensure care for those who need it.

Official sources